Given the origins of this blog I thought I should mention the current state of my health four years on from that fateful day 1n 1997.
- I am still alive: This in itself is more than I could have hoped for and I seem to well into the long tail of the morbidity statistics for my condition. Sometimes it is hard to imagine that I am terminally ill.
- Side Effects from my condition or treatments: It is difficult for me to tell which is which, and the doctors can't tell either.
- My Brain-Speech connection still has problems and I lose words and forget names more than is normal (or was normal for me). It may be getting worse, but it is definitely a slow progression ifit is. It is the only thing that still scares me, the idea that I might at some time lose my ability to communicate.
- I still have some insensitivity on my right side but either it has got better or I have gotten used to it, I think this was a by-product of my biopsy, but as I said nobody can prove it one way or another.
- I still get headaches on the left side of my head in the mornings, on waking, several times a week, but they are not severe and they usually go away within 30 minutes. - Drugs: I only take Timonil (Carbamazepine) 300 twice a day as a precautionary measure against seizures. This to make sure that my regular EEG doesn't show too much craziness in the damage areas (see plot below) because if it did I would be banned from driving. (Given the drugs I am more likely to get banned for other reasons, but more of that in another post perhaps).
- Monitoring: I am now down to 2 check ups a year which comes down to alternate EEG / MRI appointments. Sometimes I feel embarassed taking up the time of the guys and gals at the hospital just so that Professor Neuro can say "No Change"
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| Interesting bit is around 3:47 where the sensors (FP1-F7, F7-T3, T3-T5, T5-O1) around my damage get a little crazy, but not crazy enough to worry Prof. Neuro thank goodness |
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